First and foremost, here is the completely awesome picture that a deeply cool chick spent TONS of time drawing for me. It's my inspiration picture, I'm framing it and putting it in my hospital room as a source of inspiration to get better fast - I titled it, "Determination." Thanks Holly, you rock.
Secondly, had all the pre-op tests and whatnot on Thursday and here is the general overview.
I NAILED the pulmonary function test, function was above average so that's a plus. Suck it lungs. Met with both surgeons and actually made one of them laugh. Well, David did actually. He asked him if we could keep the pieces they cut out. There was a slight pause, he laughed and said in a thick accent, "Um, no." Apparently, they need those pieces for the pathology lab so they can be sure that they grabbed everything. He did give me an awesome little booklet of "Your New Esophagus" or some equivalent of that. Here is a diagram of how my new insides will look:
I will have a new little tube-sock stomach basically in my chest. So, if I ever overeat, I will have a lump in my chest?!? Well, won't happen, so I guess no sense in worrying about it. The feeding tube is sexy, isn't it? David is going to put googly eyes on it just to keep things interesting - nothing like anthropomorphizing something ACTIVELY coming out of your body. I will have that lovely little ripcord for about 3 weeks after I come home. I will have to push a "paste", for lack of a better word, through it several times a day and gradually I will mix in more regular oral food and decrease the feeding tube fun time until they just pull it out. Hope my chute doesn't blow when they do.....
We have to be at the hospital at the glorious hour of 6am. Surgery begins at 7:30am and will last approximately 7-8 hours. They will open me in the front and in the side, towards the back. They take out the upper part of the esophagus and the top part of the stomach. Then they stitch the damned thing up and push it up into my chest and reattach it to the bottom part of the esophagus. The day after surgery, they will want me up and walking. I cannot even believe that. I'll spend about two days in ICU and then they will move me to a regular room for the rest of my stay.
About 6-7 days after, they will have me swallow a colored liquid and if nothing drains out through the drainage tubes coming out of me like Dr. Octagonapus from Spider Man, then I am good to go and there are no perforations along the reattachment area. If anything leaks, then we all scream and run around the room flailing our hands around. Well, actually, they wait another day or two, give it time to heal some more and then they check again.
They'll want me up and walking every day, several times a day, (did I mention all the drainage tubes that will be coming out of me? and the catheter and a lovely tube running down my nose and into my esophagus so my stomach/tube sock doesn't fill up with air and place too much pressure on my newly crocheted esophagus) plus breathing exercises and I'll tell you why.... Working around in there must be very tight and cramped, lots of other big organs are in the way and generally being jerks. So, when they intubate me, they will only send oxygen into one lung. As a result, the other lung will naturally deflate and move out of the way so they can get in there and do their bidness. I am just a little creeped out by this, but what the hell do I know. So, I get to do breathing exercises to kee me from contracting pneumonia - I am sure that Maggie knows ALL about these.
Diet: Clear Liquid, then Full Liquid, then Soft Foods and then slowly start introducing some regular food a little bit at a time. I should be able to eat somewhat regularly in about six months and full recovery within a year from surgery. For quite a while, I will be eating about 8 times a day and literally eating a "bite" at a time. Good thing is, with a much smaller stomach, as long as I behave, I should be able to stay trim for the rest of my life. Gotta glean all the good stuff you can.
More soon, love you all.


Steph, can't believe how good your attitude has stayed. Your grace and incredible sense of humor are amazing. You have a lot of people praying for you girlfriend and The Big Man will be in control of the surgeon's hands. I told your mom if you guys need help with getting Claire to school or anything else we can do, I would be glad to come up for a while and help out. We love you!
ReplyDeleteLove you Brenda, thank you all for your cards and notes and prayers. It means the world to me. David is amazing and has everything covered already, it's really incredible.
DeleteI love the "Stephanie fighting the Grim Reaper" drawing that Holly did. I think it depicts well the danger and "grim" seriousness of this battle. Mr. Reaper (aka Jeffrey) is not a scrawny foe (although he is weakened by chemo and hate, disgust, and ire) and Stephanie, you have to continue to fight with all you've got, as we (your MANY friends, family, and loved ones) spirit you magic deadly exploding-on-impact bullets for that hell of a big gun you've got leveled at him. He's probably a bit freaked at the proposition of being cut out of you and then being deprived of oxygen to DIE. I hope the pathology lab (after they've examined what's left of the dead Jeffrey - you really don't want him, David)) grind him up, ship him to Hell and set him on fire to burn eternally. There! Then comes the healing of our dear Stephanie helped along by LOVE... and celebrated with LOVE. Jack and I LOVE YOU! Linda
ReplyDeleteAmen and pass the lighter fluid! I love you and Jack, sending big hugs and kisses. See you dark and early on Tuesday :)
DeleteHoney, you just simply and completely rock. All of us can learn much from you. Your strength, wit, grace and spirit through all of this are completely awesome, amazing and humbling. I want to grow up to be just like you, my precious, beloved, incredible and cherished daughter. Soldier on, and put this damnable Jeffrey behind you. Good health will be yours again.
ReplyDeleteI love you with all my heart and soul, Mom xoxoxox
Thank you so much, Mom. I love you very much. Let's all keep our fingers and toes crossed - mount up and ride him into the dirt.
Deleteit is an absolute pleasure to see my drawing on your blog! I'm ecstatic to see it up there! forge on hunny. you have all the support in the world from friends and family who love and support you. I wish you all the luck in the world and send you all the love that the sky can hold. my family and i will all be praying for you when the big day hits.
ReplyDeletelove ~ Holly
It's an honor to put it up there and know you did all that. Thank you, hugs and kisses.
DeleteI am thinking about you and praying
ReplyDeleteI love you and will come see you soon
Keep fighting
Love maggie